The burden of treatment refers to the demands that healthcare professionals and systems place on patients and their support community, and the implications this has on their quality of life. 1 It is an important barometer of quality of care.It includes the work involved in self-management of care such as: gaining an understanding of chronic conditions, their management and implications; engaging with health and social care professionals, family, and friends to access care and treatments; putting self-management recommendations into practice; taking multiple medications; enduring side effects; attending appointments and investigations; enacting lifestyle and behaviour changes; self-monitoring activities and reconfiguring treatments to make them workable; and navigating complex care systems.
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Mair et al. (2021) studied this question.
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