What question did this study set out to answer?

To examine whether demographic question design influences the willingness of genetic counselors to participate in surveys and report data accurately, particularly those from underrepresented minority groups.

September 17, 2026Journal of Genetic CounselingOpen Access

North American Genetic Counselors' Perceptions of Identifiability From Demographic Questions on Surveys

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Authors

ARAarti Ramdaney JCJennifer Czerwinski MAMyla Ashfaq

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Overview

Survey study finds high identifiability concerns from demographic questions among underrepresented genetic counselors, suggesting survey design affects data accuracy and participation.

Key Points

To examine whether demographic question design influences the willingness of genetic counselors to participate in surveys and report data accurately, particularly those from underrepresented minority groups.
Administered a 13-item online survey between August and September 2023 to genetic counselors practicing in the United States and Canada (N=153).
Evaluated underrepresented minority status, professional survey participation, and identifiability concerns using descriptive statistics and inductive thematic analysis.
Respondents identifying as underrepresented minorities were more likely to report feeling identifiable based on demographic questions compared to non-minority peers.
Participants reported intentionally skipping demographic items or modifying answers to preserve anonymity, recommending flexible answer formats and limiting unnecessary demographic queries.

Cite This Study

Ramdaney et al. (2026) studied this question.

synapsesocial.com/papers/6aabb68c5f706d05830e5031 https://doi.org/10.1002/jgc4.70292

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September 17, 2026Journal of Genetic CounselingOpen Access

North American Genetic Counselors' Perceptions of Identifiability From Demographic Questions on Surveys

View Full Paper

Ask AI

Bookmark

Authors

ARAarti Ramdaney JCJennifer Czerwinski MAMyla Ashfaq

Discussion

Member takes

Overview

Survey study finds high identifiability concerns from demographic questions among underrepresented genetic counselors, suggesting survey design affects data accuracy and participation.

Key Points

To examine whether demographic question design influences the willingness of genetic counselors to participate in surveys and report data accurately, particularly those from underrepresented minority groups.
Administered a 13-item online survey between August and September 2023 to genetic counselors practicing in the United States and Canada (N=153).
Evaluated underrepresented minority status, professional survey participation, and identifiability concerns using descriptive statistics and inductive thematic analysis.
Respondents identifying as underrepresented minorities were more likely to report feeling identifiable based on demographic questions compared to non-minority peers.
Participants reported intentionally skipping demographic items or modifying answers to preserve anonymity, recommending flexible answer formats and limiting unnecessary demographic queries.

Cite This Study

Ramdaney et al. (2026) studied this question.

synapsesocial.com/papers/6aabb68c5f706d05830e5031 https://doi.org/10.1002/jgc4.70292

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