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September 17, 2026Research Involvement and EngagementOpen Access

Put purpose before process: lessons from evaluating patient involvement in governance structures in health research organisations

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KSKristina Staley

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Kristina Staley (2026) studied this question.

synapsesocial.com/papers/6aabb7865f706d05830e69afhttps://doi.org/10.1186/s40900-026-00942-0
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Why involvement remains fragile: a qualitative comparison of principal investigators’ and patient organisations’ perspectives in Italy2026
  2. 2Expertise or representation: What gives people with lived experience authority and legitimacy in involvement in research?2026
  3. 3From patient to partner: reflections on being a patient leader in the COMFORT Nursing Programme2026
  4. 4Facilitators and barriers to patient and public involvement in developing learning health systems within community health services: ascoping review2026
  5. 5Turning the tables: creating space for lived experience leadership in research2026 · 1 citations