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Captured external expert commentary on this paper, strongest first. Original sources are linked where available.
“Some patients leave their pediatric cardiologist and think they don't need to see a physician anymore, and others are seen by a cardiologist with no training in congenital heart disease. We really need to focus on how to better care for this population.”
“Adult cardiologists have never before been presented with patients who have such complex congenital heart disease, because in the past, most of these patients did not survive to adulthood. These guidelines are an important component of a multi-pronged strategy to provide appropriate care for adults with congenital heart disease.”
“The 2008 ACC/AHA adult congenital heart disease guidelines include recommendations for follow-up for different types of congenital heart disease. In general, patients with moderate or complex conditions should have regular follow-up with a specialty adult congenital heart disease physician.”
Warnes et al. (2008) studied this question.
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