Convincing Family Caregivers to Participate in Research: “Does that Count as Caregiving?”

This essay details lessons learned in the completion of a dissertation on family caregivers. The four central lessons address challenges with scheduling for caregivers, caregiver understanding of their own activities, the culturally situated nature of caregiving, and the importance of advocating for one's research. Each lesson includes context for how the lesson emerged from a significant problem in applied research and tactics for improvement in similar or related work.