Key result
ESC initiates worldwide registry to investigate pathophysiology and outcomes of peripartum cardiomyopathy.
Why the study?
Peripartum cardiomyopathy is a rare, life-threatening heart failure with variable onset and poorly understood pathophysiology, limiting treatment options and knowledge of incidence in Western countries.
This review highlights the need for a registry to better understand the pathophysiology and incidence of peripartum cardiomyopathy and introduces the Euro Observational Research Program.
Peripartum cardiomyopathy is a rare but potentially life-threatening form of heart failure affecting women late in pregnancy or in the first months after delivery. Peripartum cardiomyopathy is difficult to diagnose and its onset and progression are variable between individuals. The pathophysiology remains poorly understood, hence treatment options are limited and possibly harmful to the foetus. Furthermore, geographical incidence varies greatly and little is known about the incidence in Western countries. To gain further understanding of the pathophysiology and incidence of peripartum cardiomyopathy, the European Society of Cardiology initiated a study group to implement a registry. This review provides an overview of current insights into peripartum cardiomyopathy, highlights the need for such a registry and provides information about this Euro Observational Research Program.
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Hoes et al. (2014) conducted a review in Peripartum cardiomyopathy. Peripartum cardiomyopathy is a rare, potentially life-threatening condition with poorly understood pathophysiology, prompting the European Society of Cardiology to initiate a worldwide registry.
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