Concordance and Discrepancy: Family Member Perspectives on Caregiving and Future Planning for Individuals With Intellectual and Developmental Disabilities in Taiwan

Sibling involvement in caregiving for adults with intellectual and developmental disabilities (IDD) is increasingly important, yet research often overlooks their role, especially in Asian families. This study explores the perspectives of siblings, parents, and adults with IDD in Taiwan regarding caregiving tasks and future planning. In this paper, the research team focused on the first phase of a sequential explanatory mixed‐methods design study, in which we surveyed 334 participants to examine differences in perspectives toward sibling involvement in caregiving and future planning. Results indicated that family members perceived siblings engaged in various caregiving tasks sporadically. While family duty is acknowledged across groups, siblings, parents, and adults with IDD showed different views on the reasons for siblings to engage in caregiving responsibilities. Future planning activities were generally lacking, with insufficient information being a significant barrier. This study highlights the importance of considering diverse family perspectives in caregiving and future planning for adults with IDD, which has important implications for developing family‐centered interventions and policies within cultural contexts to promote effective caregiving and ensure family quality of life.