Understanding Past and Present Surgical Registries for Patients with Uterovaginal Prolapse and Planning the Development of a Global Registry

Introduction and Hypothesis Registries following patients who undergo surgery for uterovaginal pelvic organ prolapse provide real-world postoperative evidence. We aimed to identify characteristics of successful registries that could be used to develop a sustainable global registry for these patients. Methods We performed a systematic review of the literature to identify existing and past registries on the surgical management of primary uterovaginal pelvic organ prolapse. Once identified, key characteristics of the registries were collected, and consensus statements about future efforts to develop a global registry were created. These statements were evaluated through a modified Delphi process. Results One hundred and eleven articles were identified and reviewed, published from 17 registries. Consensus was achieved for the following three statements: surgeons treating patients for uterovaginal pelvic organ prolapse should standardize baseline, surgical, and postoperative objective and subjective data to facilitate the development of a universal registry; urogynecological surgeons and researchers should seek to minimize cost and maximize feasibility by automating data collection through emerging technologies; urogynecological surgeons and researchers should seek the input of key stakeholders to iteratively improve the registry and ensure that it remains evidence-based and current. Conclusions Understanding past and present surgical registries prepares us for the multifaceted efforts that will be required to develop a sustainable, global registry for the surgical management of uterovaginal pelvic organ prolapse.