Key result
Stakeholder analysis defines ~6 key design priorities for post-discharge CHD home care mHealth.
This qualitative study integrates perspectives from caregivers, clinicians, and developers to establish six core design themes—individualization, usability, multimedia convergence, real-time readiness, information consistency, and emotional support—for developing effective post-discharge mHealth tools for children with congenital heart disease.
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These themes may guide CHD mHealth design; hypothesis-generating and leaves open prospective trials before adoption.
Background: Congenital heart disease (CHD) remains a leading global birth defect with high prevalence, yet advances in diagnosis and treatment have raised survival rates to 90%-95%. This epidemiological shift transforms CHD into a chronic condition demanding long-term post-discharge home management. Although mobile health (mHealth) holds promise for supporting such care, current tools suffer from low adherence, insufficient age-appropriateness, and a lack of emotional and social support, and most evaluations neglect the integrated perspectives of primary caregivers, clinicians, and technical developers. Objective: This study aims to explore and synthesize the needs for and perspectives regarding an idealized mHealth system for post-discharge CHD home care from the perspectives of primary caregivers (PC), healthcare professionals (HP), and technical consultants (TC). Methods: A qualitative descriptive design was employed, using semi-structured interviews with seven PC, six HP, and three TC. Data were analyzed using Braun and Clarke's Reflexive Thematic Analysis (RTA) framework. Results: Six overarching themes were identified: (1) tailored to individual, (2) easy to use, (3) media in convergence, (4) at the ready, (5) one clear voice and (6) emotional support on demand. Conclusions: These findings provide a stakeholder-informed framework to guide future development of user-centered, clinically relevant, and technically robust mHealth interventions.
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Yanglan et al. (2026) studied Congenital heart disease (post-discharge home care) (n=16). Mobile health (mHealth) system for post-discharge congenital heart disease home care was evaluated on Needs and perspectives regarding an ideal mHealth system for post-discharge CHD home care analyzed via Reflexive Thematic Analysis. Stakeholder interviews identified 6 themes for ideal CHD home care mHealth: tailored to individual, easy to use, media in convergence, at the ready, one clear voice, and emotional support on demand.
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