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July 31, 2025

Combining deliberative engagement with qualitative research to assess patient and caregiver perspectives on curative therapies for sickle cell disease in Africa

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Authors

DBDaima BukiniJMJennifer MashakaARAhmad Oussama Rifai

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Overview

Qualitative research reveals patient and caregiver views on curative therapies for sickle cell disease, highlighting deliberative engagement's role.

Key Points

  • Deliberative engagement improved qualitative research outcomes in understanding patient perspectives on therapies.
  • Patients and caregivers from Tanzania shared valuable insights on curative options for sickle cell disease.
  • Participants were identified through innovative methodologies addressing knowledge gaps in curative treatments.
  • The findings support better preparation of healthcare communities for introducing advanced therapies in Africa.

Cite This Study

Bukini et al. (2025) studied this question.

synapsesocial.com/papers/689a0c5fe6551bb0af8cf53bhttps://doi.org/10.1101/2025.07.30.25332426
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1I know that one day I will be cured, and all will be well: Perspectives on acceptability of curative therapies for sickle cell disease in Tanzania.2025 · 1 citations
  2. 2“I know that one day I will be cured”: Perspectives on acceptability of curative therapies for sickle cell disease in Tanzania2026
  3. 3Exploring Affordable Curative Therapy for Sickle Cell Disease in Africa: A Comprehensive Overview2026 · 2 citations
  4. 4Democratizing Education for Sickle Cell Disease Gene Therapy: A Community-Based Model for Creating Patient Education Materials.2025
  5. 5Advancing Sickle Cell Disease Treatment in Sub‐Saharan Africa: Challenges and Opportunities for Disease Modifying Therapies2026 · 1 citations