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August 17, 2025Pediatric Blood & Cancer

Caregiver Well‐Being and Pediatric Healthcare Utilization in Youth With Sickle Cell Disease: The Role of Caregiver and Child Factors

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Authors

TKTheresa L. KapkeMedical College of Wisconsin JZJian ZhangSUNY Downstate Health Sciences University KYKe YanCapital University

Discussion

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Implication

Observational analysis highlights emotional distress and socioeconomic disadvantage in caregivers, indicating impacts on healthcare utilization for youth with sickle cell disease.

Key Points

Caregivers of youth with sickle cell disease and comorbid conditions report increased emotional distress, affecting their well-being.
Caregiver adverse childhood experiences are linked to lower attendance rates in sickle cell disease clinics, showing potential barriers to care.
Younger caregiver age and socioeconomic disadvantage are associated with higher no-show rates for outpatient care, affecting healthcare continuity.
Understanding how caregiver and child factors influence healthcare utilization may enhance care strategies for families dealing with sickle cell disease.

Cite This Study

Kapke et al. (2025) studied this question.

synapsesocial.com/papers/68af432fad7bf08b1ead256d https://doi.org/10.1002/pbc.31939

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Implication

Observational analysis highlights emotional distress and socioeconomic disadvantage in caregivers, indicating impacts on healthcare utilization for youth with sickle cell disease.

Caregiver Well‐Being and Pediatric Healthcare Utilization in Youth With Sickle Cell Disease: The Role of Caregiver and Child Factors

Discussion

Member takes

Implication

Key Points

Cite This Study

Caregiver Well‐Being and Pediatric Healthcare Utilization in Youth With Sickle Cell Disease: The Role of Caregiver and Child Factors

Discussion

Member takes

Implication

Key Points

Cite This Study

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