Synapse
⌘+K
Synapse
PulseExploreClubsResearchersJournals
Instagram
HomeClubsExplore
December 8, 2025BloodOpen Access

Humanistic and economic burden among caregivers of adults and children with sickle cell disease and recurrent vaso-occlusive crises

View Full Paper
Ask AI
Bookmark
Share

Authors

DBDuncan BrownMCMelanie CalvertAMAnthony Mason

Discussion

Loading...

Member takes

Overview

Quantitative survey reveals caregiver burden and health-related quality of life impacts among those caring for patients with sickle cell disease.

Key Points

  • Evaluate the humanistic and economic burden of caregiving for patients with sickle cell disease experiencing recurrent vaso-occlusive crises.
  • Conducted an online survey of caregivers in North America and Europe
  • Collected demographic, clinical, and health-related quality of life data
  • Evaluated caregiver characteristics and financial burdens
  • 173 caregivers participated, predominantly female and married
  • Average caregiver age was 40.5 years, with an average of 12.4 years of caregiving
  • Caregiver burden significantly affected quality of life, with high emotional and financial distress

Cite This Study

Brown et al. (2025) studied this question.

synapsesocial.com/papers/693624d74fa91c937236d099https://doi.org/10.1182/blood-2025-1092
View Full Paper
Ask AI
Bookmark
Share

Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Strength in Silence: The Invisible Burdens of Caregivers of Adults with Sickle Cell Disease2026
  2. 2Caregiver Well‐Being and Pediatric Healthcare Utilization in Youth With Sickle Cell Disease: The Role of Caregiver and Child Factors2025 · 1 citations
  3. 3Costs and Impact of Disease in Adults with Sickle Cell Disease: A Pilot Study2024 · 8 citations
  4. 4Impact of sickle cell disease on patientsʼ daily lives, symptoms reported, and disease management strategies: Results from the international <scp>Sickle Cell World Assessment Survey</scp> (<scp>SWAY</scp>)2020 · 201 citations
  5. 5Exploring Factors Associated with Quality of Life in Caregivers of Children and Adolescents with Sickle Cell Disease and HIV: A Comparative Analysis2024