Synapse
⌘+K
Synapse
PulseExploreClubsResearchersJournals
Instagram
HomeClubsExplore
September 10, 2025

Novel use of a Hashed Identifier Token for Sharing Sickle Cell Disease Data Without Sharing PHI (Preprint)

View Full Paper
Ask AI
Bookmark
Share

Authors

NGNajibah A. GaladanciGHGerhard HellemannSWSamuel Washko

Discussion

Loading...

Member takes

Overview

Project develops a hashed identifier token for data sharing in sickle cell disease registries, indicating enhanced privacy.

Key Points

  • Identifying 1080 unique individuals across multiple sickle cell disease registries improves data insights.
  • A total of 8026 records were linked using a hashed identifier token, ensuring participant privacy throughout the process.
  • The study implemented at the UAB Lifespan Sickle Cell Center demonstrates a novel method for data interoperability.
  • Enhancing data connection among registries may deepen understanding and personalization of treatment for sickle cell disease.

Cite This Study

Galadanci et al. (2025) studied this question.

synapsesocial.com/papers/68c189ca9b7b07f3a06130efhttps://doi.org/10.2196/preprints.82493
View Full Paper
Ask AI
Bookmark
Share

Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1ASH Research Collaborative: a real-world data infrastructure to support real-world evidence development and learning healthcare systems in hematology2021 · 28 citations
  2. 2Determinants of severity in sickle cell disease2022 · 81 citations
  3. 3Balancing benefits and burdens: a systematic review on ethical and social dimensions of gene and cell therapies for hereditary blood diseases2025 · 5 citations
  4. 4Design of Smart and Secured Healthcare Service Using Deep Learning with Modified SHA-256 Algorithm2022 · 25 citations
  5. 5Evaluating the Discriminatory Ability of the Sickle Cell Data Collection Program’s Administrative Claims Case Definition in Identifying Adults With Sickle Cell Disease: Validation Study2023 · 13 citations