Survey reveals insights into diagnostic process in pediatric patients, suggesting improved communication is needed.
Background/Purpose: Inflammatory brain diseases in children are rare and poorly understood, with overlapping clinical presentations that challenge patients, families, and clinicians. To explore patient and parent perception of the diagnostic process and improve diagnostic communication, we surveyed patients enrolled in the Swiss Pediatric Inflammatory Brain Disease Registry and/or their families.
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Hulliger et al. (2025) studied this question.
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