February 23, 2024Orphanet Journal of Rare DiseasesOpen Access

The Prader-Willi syndrome Profile: validation of a new measure of behavioral and emotional problems in Prader-Willi syndrome

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The 57-item Prader-Willi syndrome Profile identifies eight behavioral dimensions, accounting for 60.52% of test variance in 873 evaluated participants.
Principal component factor analysis along with iterative stakeholder feedback confirmed strong test-retest reliability as well as convergent validity.
Supports broader clinical trials by tracking behavioral and emotional manifestations beyond hyperphagia in individuals with chromosome 15q11-13 defects.

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Implication

Validation study demonstrates robust psychometric properties of a behavioral profile in Prader-Willi syndrome, highlighting its utility for clinical trials.

Cite This Study

Dykens et al. (2024) studied this question.

synapsesocial.com/papers/68e77de8b6db6435876f1620 https://doi.org/10.1186/s13023-024-03045-9

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Implication

Validation study demonstrates robust psychometric properties of a behavioral profile in Prader-Willi syndrome, highlighting its utility for clinical trials.

The Prader-Willi syndrome Profile: validation of a new measure of behavioral and emotional problems in Prader-Willi syndrome

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Discussion

Implication

Cite This Study

The Prader-Willi syndrome Profile: validation of a new measure of behavioral and emotional problems in Prader-Willi syndrome

Key Points

Discussion

Implication

Cite This Study

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