October 16, 2025Open Access

Principles and Policy Recommendations for Comprehensive Genetic Data Governance

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Privacy risks are prevalent in the use of genetic data, raising concerns about individual rights and discrimination.
Four real-world case studies reveal critical gaps in existing regulatory frameworks for genetic data governance.
A risk assessment framework identifies key values essential for preserving privacy and preventing discrimination.
Three policy recommendations are proposed to improve genetic data governance and enhance individual protections.

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Analysis reveals privacy risks and discrimination in genetic data usage, highlighting three governance solutions.

Ramanan et al. (2025) studied this question.

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