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August 1, 2025Journal of Genetic Counseling

Shifting ownership, shifting protections: Patient privacy and genetic data ownership in the era of mergers and acquisitions

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Authors

DDDeanna R. Darnes

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Overview

Analysis reveals risks to patient privacy and ownership of genetic data during mergers, suggesting stronger protections are needed.

Key Points

  • Patient privacy and ownership of genetic data face increasing risks during business transitions, especially mergers and acquisitions.
  • Prominent genetic testing companies are not fully transparent in their privacy policies, allowing potential misuse of patient data.
  • Regulatory frameworks like HIPAA and GINA offer limited protections for how de-identified data is handled during ownership changes.
  • Incorporating privacy and ownership in informed consent is crucial for genetic counselors to protect patients against misuse of their data.

Cite This Study

Deanna R. Darnes (2025) studied this question.

synapsesocial.com/papers/68af495fad7bf08b1ead5723https://doi.org/10.1002/jgc4.70101
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