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October 23, 2025International Journal for Equity in HealthOpen Access

Care complexity and inequities in caregiving time for undiagnosed infants and toddlers with special health care needs: a cross-sectional study in Japan

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Authors

TNTomo NonoyamaKTKoji TamakoshiKNKazuteru Niinomi

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Overview

Cross-sectional study reveals disparities in caregiving among children with special health care needs, indicating urgent support requirements.

Key Points

  • Substantial caregiving burden affects undiagnosed infants with complex health needs, leading to inequities.
  • Caregiving activities particularly increased for medical care and rehabilitation in this demographic.
  • Cross-sectional study analyzed responses from 296 caregivers of children under three years, revealing care complexity nuances.
  • High unmet needs among undiagnosed children indicate urgent calls for expanding supportive frameworks.

Cite This Study

Nonoyama et al. (2025) studied this question.

synapsesocial.com/papers/68fa32a40df2e6cd2f742077https://doi.org/10.1186/s12939-025-02655-4
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Also Consider

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  1. 1Home‐Based Parenting Strategies and Challenges of Primary Parental Caregivers of Children With Medical Complexity in Japan: A Qualitative Study2026 · 1 citations
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  3. 3Medical Complexity of Children with Special Healthcare Needs and Healthcare Experiences2024 · 9 citations
  4. 4Issues navigating the healthcare delivery system among caregivers of children and youth with special healthcare needs: a qualitative study2026
  5. 5Caregiver Burden Among Parents of Children with Medical Complexity in Home-Based Care: The Role of Caregiver Rest and Family Factors2026