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July 1, 2026Child Care Health and DevelopmentOpen Access

Home‐Based Parenting Strategies and Challenges of Primary Parental Caregivers of Children With Medical Complexity in Japan: A Qualitative Study

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Authors

MYMiku YamaguchiYSYuki Suzuki

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Overview

Qualitative study explores challenges faced by primary parental caregivers of children with medical complexity, indicating the need for improved support services.

Key Points

  • This study examines the strategies and challenges faced by primary parental caregivers of children with medical complexity in Japan.
  • Qualitative study with 13 primary parental caregivers
  • Participants included those with ≥ 1 year as the principal at-home caregiver of CMC
  • Interviews were transcribed and inductively coded to achieve thematic saturation.
  • Identified eight themes regarding challenges faced, including insufficient paediatric-trained home-visit nursing services
  • Highlighted weak support for interagency coordination and inadequate transition-to-adult care support
  • Parents leveraged supportive policies, but significant gaps were identified in respite care and overall service quality.

Cite This Study

Yamaguchi et al. (2026) studied this question.

synapsesocial.com/papers/6a44b0085cd2549c8bc44df1https://doi.org/10.1111/cch.70308
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Healthcare for children depend on medical technology and parental quality of life in Japan2021 · 10 citations
  2. 2Care complexity and inequities in caregiving time for undiagnosed infants and toddlers with special health care needs: a cross-sectional study in Japan2025
  3. 3Caregiver Burden Among Parents of Children with Medical Complexity in Home-Based Care: The Role of Caregiver Rest and Family Factors2026
  4. 4Caring for Aging Parents After Childhood Maltreatment: A Qualitative Study of Japanese Adult-Child Caregivers2026
  5. 5Problems in the Primary Triage of Children with Medical Complexity in Disaster2026