Barriers to Self-Management in Breast Cancer-Related Lymphedema Patients: A Qualitative Study

Abstract Aim This study was conducted to determine barriers to self-management in breast cancer-related lymphedema (BCRL) patients. Background Breast cancer-related lymphedema is a chronic complication that affects patients' physical and psychosocial well-being. Identifying barriers to self-management is critical for improving adherence and outcomes. Design A qualitative study using a phenomenological approach. Methods Data were collected by interviewing 17 female patients through in-depth interviews. A patient introduction form and a semi-structured interview form were used. Results Two main themes (problems caused by lymphedema and obstacles in lymphedema management) and 11 sub-themes (limitation in activities of daily living, pain, limitation in socialization, deterioration in body image, economic obstacles, decreased belief in treatment, getting bored/forgetting, lack of support from family members, control mechanism, having to use the dominant arm, and regression of symptoms) were identified. Physical symptoms and movement limitations negatively impact daily life, while economic hardship and lack of support challenge treatment adherence. Economic and family support, regular monitoring, and psychosocial services are recommended. Conclusions Comprehensive BCRL management should include physical treatment and emotional and social support mechanisms to enhance adherence and improve well-being.