Socio-Occupational and Economic Challenges in Women With Postmastectomy Lymphedema

Objective: This study explored the experiences of women with postmastectomy lymphedema, focusing on daily limitations, impacts on employment and finances, and their perceptions of health care within the National Health System. Method: Using a qualitative phenomenological approach, 20 women with postmastectomy lymphedema were recruited from specialized lymphedema units at 2 physiotherapy clinics and the Lymphedema Patient Association in Spain. Data were collected through unstructured and semi-structured interviews and analyzed using inductive thematic analysis. Results: The study identified a main theme, “Limitations and Barriers to Living with Lymphedema,” with subthemes on daily life limitations, employment and financial impacts, and perceptions of health care. Participants reported significant restrictions on autonomy and challenges in fulfilling maternal and work roles due to lymphedema. Conclusions: Women with postmastectomy lymphedema experience notable barriers that affect their autonomy and employment. The health care system displayed gaps, particularly in preventive information and access to treatments, underscoring the need for enhanced socio-health care support.