What type of study is this?

This is a Systematic Review study (also classified as: Validation Study).

What question did this study set out to answer?

To design a minimum dataset for developing a registry system for haemophilia in Iran.

View Full Paper

Ask AI

Bookmark

Authors

This research establishes a minimum dataset for a haemophilia registry, enhancing patient care and supporting clinical research in Iran.

To design a minimum dataset for developing a registry system for haemophilia in Iran.
Conducted in two stages, starting with a scoping review of 40 articles using PubMed, Scopus, and Web of Science.
Consulted 14 haematology specialists through a questionnaire to validate data items for the registry.
Used descriptive statistics and SPSS software for data analysis.
Extracted 77 initial data items across four categories: demographic data, laboratory data, clinical data, and adverse outcomes.
Final dataset confirmed 58 items with over 75% agreement among specialists, including specific counts for each category.
Findings provide a foundation for improved patient care and alignment with international standards for bleeding disorders.

Farajollahi et al. (2025) studied this question.

View Full Paper

Ask AI

Bookmark