What question did this study set out to answer?

This research aims to explore how demographic factors affect the diagnosis delay of pediatric CNS tumors in Indonesia.

November 1, 2025Neuro-Oncology0 citationsOpen Access

Disp-40. Are Demographic Factors Contributing to the Delayed Diagnosis of Pediatric CNS Tumors in Lmics? The Indonesian National Hospital Perspective

LRLudi Dhyani Rahmartani MBMichael Nathaniel Budiarso KGKevin Gunawan

Key Points

This research aims to explore how demographic factors affect the diagnosis delay of pediatric CNS tumors in Indonesia.
Conducted a longitudinal study at Cipto Mangunkusumo National General Hospital.
Analyzed demographic and diagnosis profiles of 101 patients from January 2022 to December 2023.
Measured intervals from symptom onset to consultation, diagnosis, and treatment.
Median age of patients was 8 years, with 54.5% being girls.
Diagnosis delay was correlated with local hospital referrals (p = 0.047) rather than geographical distance (p = 0.699).
Uncommon symptoms like macrocephaly led to significant delays in seeking medical attention.

Abstract

Abstract BACKGROUND AND AIMS Pediatric central nervous system (CNS) tumors pose a significant health burden in low- and middle-income countries (LMICs), including Indonesia. Indonesia comprises 38 provinces spread across more than 17,000 islands, with the main islands being Sumatra, Java, Bali .001). Uncommon symptoms like puberty abnormalities, macrocephaly, and proptosis often lead to prolonged delays in seeking medical attention and diagnosis. CONCLUSIONS Delayed diagnosis of pediatric CNS tumors in LMICs, such as Indonesia, remains a critical issue with significant impacts on treatment outcomes. Addressing these challenges in Indonesia could significantly reduce diagnosis-treatment delay time and improve outcomes for children with CNStumors in LMICs.

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