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December 8, 2025BloodOpen Access

Dismantling systemic barriers in sickle cell disease care: Design and rationale of a municipal public health initiative in New York City

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Authors

KRKenneth RivlinAZAnna ZhilkovaJJJenai Jackson

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Overview

Quality improvement initiative reduces hospitalizations for sickle cell disease by addressing acute care failures and community advocacy.

Key Points

  • This research aims to address systemic barriers in sickle cell disease care in New York City.
  • City-wide quality improvement initiative (2024-2026)
  • Provider engagement and education through CME webinars
  • Data-driven QI catalysis with hospital-specific LAMA data
  • Awareness initiatives for sickle cell trait counseling in pediatric practice
  • Educational components reached over 1000 healthcare professionals
  • Analyzed hospital-specific LAMA rate to guide outreach and QI efforts
  • Identified root causes of high LAMA rates leading to targeted interventions
  • Baseline data established from 2022 SPARCS database

Cite This Study

Rivlin et al. (2025) studied this question.

synapsesocial.com/papers/69362f444fa91c937236d585https://doi.org/10.1182/blood-2025-2588
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Implementation of a comprehensive sickle cell center leads to improved access to care and decreased acute care use2026
  2. 2A mixed-methods evaluation to optimize the existing hospital based sickle cell disease care model from a tribal area of Gujarat, India2026
  3. 3Addressing institutional barriers in sickle cell pain management: A resident-led quality improvement study2025
  4. 4Geographic and temporal trends in sickle cell disease hospitalizations in New York State2025
  5. 5A Public Health Led, Statewide Approach to Improving Emergency Department care for Individuals with Sickle Cell Disease—North Carolina2026