Synapse
⌘+K
Synapse
PulseExploreClubsResearchersJournals
Instagram
HomeClubsExplore
December 8, 2025BloodOpen Access

Implementing linkage coordination: Patient experiences in the recruitment and engagement in care to impact practice enhancement (RECIPE) for sickle cell disease study

View Full Paper
Ask AI
Bookmark
Share

Authors

CVCatherine ViatorLHLewis L. HsuMTMarsha Treadwell

Discussion

Loading...

Member takes

Overview

Qualitative data reveals enhanced patient engagement and satisfaction in sickle cell disease care, suggesting better retention strategies.

Key Points

  • The study aims to evaluate patient experiences with linkage coordinators in sickle cell disease care.
  • Conducted in two waves with established sickle cell adult comprehensive care centers
  • Surveyed newly affiliated patients and conducted patient interviews
  • Collected both quantitative and qualitative data on patient experiences and satisfaction
  • Majority of patients had positive experiences with the linkage coordinator
  • 80-98% reported significant help from the linkage coordinator in accessing care
  • Patients highlighted reduced stress and improved accessibility to care through linkage coordinators

Cite This Study

Viator et al. (2025) studied this question.

synapsesocial.com/papers/69362f604fa91c937236dd49https://doi.org/10.1182/blood-2025-1089
View Full Paper
Ask AI
Bookmark
Share

Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Patient outcomes for sickle cell disease with support staff-driven interventions: A scoping review2025
  2. 2Community Health Worker–Integrated Model for Sickle Cell Disease Management: Protocol for a Feasibility Study2026
  3. 3Implementation of a comprehensive sickle cell center leads to improved access to care and decreased acute care use2026
  4. 4Strengthening Community-Academic Partnerships to Enhance Care for Sickle Cell Disease2025 · 1 citations
  5. 5Consolidation of adult inpatient sickle cell care to improve patients' and learners' experiences: A qualitative exploration of various stakeholders' perspectives2025