What question did this study set out to answer?

To evaluate reproductive health service delivery at National Alliance for Sickle Cell Centers (NASCC) and identify resource gaps.

December 8, 2025Blood

Evaluating reproductive health service delivery at nascc recognized comprehensive sickle cell centers

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Survey shows gaps in reproductive health services for sickle cell patients, highlighting needs for infertility care and genetics.

To evaluate reproductive health service delivery at National Alliance for Sickle Cell Centers (NASCC) and identify resource gaps.
Distributed a survey to NASCC site directors from July 2024 to April 2025.
Survey included questions on demographics, available reproductive health services, and policies at NASCC sites.
Analyzed responses from NASCC recognized sickle cell centers regarding service availability and barriers.
Received responses from 44 out of 88 NASCC centers, reflecting national demographics of sickle cell patients.
Most centers reported challenges in providing infertility and fertility preservation services due to insurance issues.
Only 20% of sites had referral pathways for complex family planning, highlighting a service gap.

Nandi et al. (2025) studied this question.

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