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December 8, 2025BloodOpen Access

Patient and clinician perspectives on the diagnosis and management of polycythemia vera: Results from concurrent surveys

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Authors

AGAaron T. GerdsCleveland ClinicCPChristina PersaudMPN Research FoundationJMJonathan MossNew Jersey Department of Education

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Implication

Surveys reveal differences in diagnostic accuracy and treatment goals in patients with polycythemia vera, suggesting improved clinician-patient communication is needed.

Key Points

  • Assess the perspectives of patients and clinicians on polycythemia vera diagnosis and management.
  • Parallel surveys conducted for PV patients and their clinicians
  • Surveys included queries on disease burden, treatment goals, and communication
  • Completed by 249 patients and 27 clinicians between October and December 2024
  • 64% of patients felt they received a timely diagnosis versus 100% clinician confidence in diagnosis
  • 89% of patients prioritized slowing disease progression, while 42% included quality of life in their top goals
  • 92% of clinicians integrate patient goals in treatment decisions, but only 61% of patients agree

Cite This Study

Gerds et al. (2025) studied this question.

synapsesocial.com/papers/69362f7f4fa91c937236e540https://doi.org/10.1182/blood-2025-2653
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Patient Journey Mapping in PV: A Mixed Methods Approach Study to Evaluate the Quality of Life in a Cohort of Portuguese Patients2025
  2. 2Symptoms and life impact of polycythemia vera (PV): Results from a qualitative patient interview study.2026
  3. 3Modern and multidisciplinary care in polycythemia vera2026 · 1 citations
  4. 4Burden of illness and hematocrit control among patients with high- and low-risk polycythemia vera receiving current standard of care treatment in the United States2025
  5. 5Results from a US modified Delphi consensus to define disease progression and disease modification in polycythemia Vera2025 · 1 citations