What question did this study set out to answer?

To co-produce a PREM suitable for individuals with intellectual disability by engaging them in the process.

January 25, 2026Health ExpectationsOpen Access

Co‐Producing a Patient Reported Experience Measure (PREM) With and for People With Intellectual Disability

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To co-produce a PREM suitable for individuals with intellectual disability by engaging them in the process.
Conducted five hybrid co-production workshops involving diverse participants.
Utilized semi-structured interviews and the ‘think aloud’ method for preliminary user testing.
Engaged consumers and family supporters in various stages of research and data collection.
Co-production included individuals with intellectual disability and healthcare advocates.
Completed user testing involved 11 participants with various communication preferences.
Developed 9-item digitally-enabled PREMs featuring accessible designs like large fonts and audible options.

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Co-production of accessible PREMs improves healthcare value for people with intellectual disability, suggesting better service outcomes.

Newman et al. (2026) studied this question.

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