What question did this study set out to answer?

The study aims to identify and co-design tools and resources to enhance engagement in mental health and substance use research with those who have lived experience and caregivers.

March 21, 2026Health ExpectationsOpen Access

Tools and Resources for Engaging People With Lived and Living Experience and Caregivers in Mental Health and Substance Use Research: Findings From a Survey and Community Consultation Events

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The study aims to identify and co-design tools and resources to enhance engagement in mental health and substance use research with those who have lived experience and caregivers.
Conducted an online survey with participants from lived experience, caregivers, and academic researchers.
Held consultations with selected survey participants to discuss tool needs.
Engaged in a co-design phase to develop specific tools.
Identified a wide variety of tools needed for effective engagement.
Developed three specific tools including checklists and a tip sheet through collaboration.
Highlighted the importance of accessibility to existing tools for improved engagement.

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Implication

Survey identifies tools for engaging caregivers and those with lived experience in mental health and substance use research, highlighting needs.

Cite This Study

Hawke et al. (2026) studied this question.

synapsesocial.com/papers/69be37f16e48c4981c677fb7 https://doi.org/10.1111/hex.70641

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Implication

Survey identifies tools for engaging caregivers and those with lived experience in mental health and substance use research, highlighting needs.

Tools and Resources for Engaging People With Lived and Living Experience and Caregivers in Mental Health and Substance Use Research: Findings From a Survey and Community Consultation Events

Key Points

Discussion

Implication

Cite This Study

Tools and Resources for Engaging People With Lived and Living Experience and Caregivers in Mental Health and Substance Use Research: Findings From a Survey and Community Consultation Events

Key Points

Discussion

Implication

Cite This Study

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