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April 1, 2026Open Access

Involvement of family caregivers in dementia care research: a scoping review protocol

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Authors

FJFranziska Anushi JagodaJHJulian HirtCMClaudia Mueller

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Overview

Scoping review explores the involvement of family caregivers in dementia research, highlighting tailored approaches for their unique needs.

Key Points

  • The aim is to explore how family caregivers of individuals with dementia can be better involved in research to address their needs.
  • Conduct a scoping review following the Joanna Briggs Institute guidance.
  • Include databases like MEDLINE, CINAHL, Scopus, and PsycINFO.
  • Involve family caregivers from any country actively involved in the research process.
  • Screen evidence sources by two independent reviewers.
  • Use a tailored charting tool for data extraction.
  • Identifying gaps in current research regarding family caregivers' involvement.
  • Understanding the unique challenges faced by family caregivers.
  • Establishing a framework for better engagement of caregivers in research.

Cite This Study

Jagoda et al. (2024) studied this question.

synapsesocial.com/papers/69ccb69d16edfba7beb8850ehttps://doi.org/10.48620/96540
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Family Carer Involvement in Dementia Care Research: A Scoping Review and Expert Consultation.2026
  2. 2Family Carer Involvement in Dementia Care Research: A Scoping Review and Expert Consultation2026
  3. 3Virtual community-based interventions for family caregivers of people with dementia: A scoping review protocol2026
  4. 4Understanding non-traditional caregivers: protocol for a scoping review of caregiver definitions, caregiver networks and outcome measures2025
  5. 5Navigating the dementia caregiving journey: A scoping review protocol of interventions and their responsiveness to caregivers’ evolving needs across the illness trajectory2025