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July 2, 2026Health ExpectationsOpen Access

Family Carer Involvement in Dementia Care Research: A Scoping Review and Expert Consultation

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Authors

FJFranziska Anushi JagodaJHJulian HirtCMCláudia Müller

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Overview

Scoping review assesses family carer involvement in dementia research, suggesting paths for meaningful engagement.

Key Points

  • The review aimed to map and summarize evidence on the involvement of family carers in dementia care research.
  • Conducted a scoping review following JBI guidance
  • Systematically searched databases including MEDLINE and CINAHL
  • Consulted family carers to contextualize findings
  • Identified 48 studies, primarily qualitative, published between 2002 and 2026
  • Family carers contributed as co-thinkers in 35 studies and partners in 10
  • Barriers and enablers were reported in seven studies, impacting both carers and research projects

Cite This Study

Jagoda et al. (2026) studied this question.

synapsesocial.com/papers/6a45ffa29ed134303130ffb7https://doi.org/10.1111/hex.70741
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

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