Living with a hidden disability – a qualitative study of post-COVID-19 olfactory dysfunction

Introduction Since the onset of the COVID-19 pandemic, olfactory dysfunction has become increasingly prevalent, manifesting as complete loss of smell, reduced olfactory sensitivity, or distorted perceptions such as parosmia. This qualitative study explored how post-COVID-19 olfactory dysfunction is experienced and how it impacts daily life, well-being, and quality of life. Methods A qualitative design inspired by Ricoeur's phenomenological-hermeneutic approach was used. Twenty patients with post-COVID-19 olfactory dysfunction were recruited from an otolaryngology department in Denmark and interviewed between June 2023 and February 2024. Transcribed data were analyzed using Dreyer and Pedersen's Ricoeur-inspired method. The Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist was applied. Results The analysis revealed six themes: 1) Smell loss means relying on others’ sense of smell, 2) A sudden fear of body odor, 3) The smell of decay and dreadful taste take over, 4) Losing the pleasure of food and finding comfort in overeating, 5) The loss of the ability to recall and experience meaningful scents, and 6) Living with a hidden disability. Conclusions Olfactory dysfunction after COVID-19 is experienced as an invisible yet intrusive condition that impacts daily functioning, eating habits, social relationships and personal identity. The findings highlight the need for greater awareness among healthcare professionals to support patients in developing coping strategies that promote quality of life in the context of long-term sensory loss.