Learning networks such as ACTION provide a comprehensive framework beyond traditional research collaboratives to improve care for children with advanced heart failure.
May support learning networks in pediatric advanced HF care; leaves open need for prospective validation.
The learning network, exemplified by ACTION, is distinguished from traditional clinical research collaboratives by contributions in research, quality improvement, patient-reported outcomes, and education, and serves as an effective vehicle to drive clinical improvement in the care of children with advanced heart failure.
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O’Connor et al. (2021) studied this question.
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