Key result
Advanced heart failure patients cope with uncertainty by living in the present, requiring holistic support.
Why the study?
Critical questions remain regarding how structured, multidisciplinary care for people with advanced heart failure should be optimally designed to meet patients' genuine needs.
What are the experiences and care needs of patients living with advanced heart failure?
What are the experiences and care needs of patients living with advanced heart failure?
Patients with advanced heart failure require holistic support encompassing emotional, social, spiritual, and practical aspects to effectively manage their daily lives and self-care.
Answers are grounded in this paper and cite their sources.
Supports holistic communication in advanced HF; hypothesis-generating and should not yet change practice.
BACKGROUND: Despite evidence that structured, multidisciplinary care for people with advanced heart failure (AHF) significantly enhances patients' quality of life, critical questions remain regarding how such care should be optimally designed. To improve the quality of life for people with AHF, healthcare professionals must deepen their understanding of what these patients genuinely need and how best to meet them in their illness trajectory. AIM: To describe patients' experience of living with advanced heart failure in Sweden. METHODS: Fifteen patients with AHF from a medium-sized hospital in Sweden were recruited for a qualitative interview study. Content analyses were conducted. CONCLUSION: This study provides valuable insights in how patients with AHF experience their life and need care. The results highlight the need for health care to provide support to help patients cope with emotional, social, spiritual and practical everyday life situations to ease self-care.
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Gustavsson et al. (2025) studied Advanced heart failure (n=15). Patients with advanced heart failure cope with uncertainty and identity loss by living in the present, highlighting the need for holistic healthcare support and honest communication.
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