What question did this study set out to answer?

To evaluate whether racial and ethnic minorities are less willing than non-minority individuals to participate in health research.

November 30, 2005PLoS MedicineOpen Access

Are Racial and Ethnic Minorities Less Willing to Participate in Health Research?

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Authors

DWDavid WendlerNational Institutes of Health Clinical Center RKRaynard KingtonPhillips Academy JMJennifer H. MadansCenters for Disease Control and Prevention

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Implication

Literature review finds similar consent rates across racial and ethnic groups in health research, indicating that barriers to participation stem from access rather than willingness.

Key Points

To evaluate whether racial and ethnic minorities are less willing than non-minority individuals to participate in health research.
Conducted a comprehensive literature search to identify published health research studies reporting consent rates by race or ethnicity.
Analyzed enrollment decisions from over 70,000 individuals across 20 studies (18 single- or multi-site studies conducted predominantly in the US, plus two multinational European/Australasian trials) spanning non-intervention, clinical intervention, and surgical trials.
In three non-intervention studies, consent rates were 82.2% for African-Americans versus 83.5% for non-Hispanic whites (OR = 0.92; 95% CI, 0.84–1.02) and 86.1% versus 83.5% for Hispanics (OR = 1.37; 95% CI, 0.94–1.98).
In ten clinical intervention studies, consent rates were 45.3% for African-Americans versus 41.8% for non-Hispanic whites (OR = 1.06; 95% CI, 0.78–1.45) and 55.9% versus 41.8% for Hispanics (OR = 1.33; 95% CI, 1.08–1.65).
In seven surgical trials reporting combined minority data, minorities consented at 65.8% compared to 47.8% for non-Hispanic whites (OR = 1.26; 95% CI, 0.89–1.77).

Cite This Study

Wendler et al. (2005) studied this question.

synapsesocial.com/papers/6a0ff286fb2817e31dfcd665 https://doi.org/10.1371/journal.pmed.0030019

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Implication

Literature review finds similar consent rates across racial and ethnic groups in health research, indicating that barriers to participation stem from access rather than willingness.

Are Racial and Ethnic Minorities Less Willing to Participate in Health Research?

Discussion

Member takes

Implication

Key Points

Cite This Study

Are Racial and Ethnic Minorities Less Willing to Participate in Health Research?

Discussion

Member takes

Implication

Key Points

Cite This Study

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Also Consider