Cross-sectional survey identifies informational gaps before gender affirming surgery in AFAB individuals, highlighting a need for standardized education.
Introduction Gender-affirming care aims to reduce gender-related distress and support identity through psychological, social, medical, and surgical interventions. Pre-operative counselling for phalloplasty/metoidioplasty in assigned female at birth (AFAB) patients remains variably delivered and inconsistently documented. Objective We aimed to map: 1) which topics patients rate as most important before surgery, 2) which topic is actually covered and by whom, 3) the informative gap (IG) to guide patient-centred counselling. Methods Single-centre cross-sectional survey of AFAB adults who underwent phalloplasty or metoidioplasty (2008–2024). Items were rated on 5-point Likert scales; “high importance” = 4–5. Coverage captured whether the topic was addressed and by which source. The IG [%(high importance) - %(coverage)] was calculated for each pre-operative item. The questionnaire responses were summarized using descriptive statistics, using Jamovi software. Ethics: anonymous minimal-risk survey; per local policy, formal Ethical Committee approval was not required. Results N=44 respondents (median age 33 years, IQR 29-39). Among pre-operative topics, the highest-priority items were: possible complications, donor-site preparation, differences between surgical techniques, and long-term follow-up/complications. The surgical team was the preferred source across items. However, coverage by the surgical team was reported for only about half of the pre-operative topics (12/24); for the remainder, >50% reported receiving no information. Notably, more than two-thirds did not receive pre-operative information on recognising/handling ischaemic complications, urethral fistula/stenosis, out-of-pocket financial costs, or the need for a structured postoperative support plan. Friends and the internet emerged as secondary sources (≈32% and ≈17%, respectively). The largest IG clustered around early complication recognition/management, financial planning and post-discharge support planning. Conclusions For AFAB men gender-affirming surgery substantial pre-operative IG persists. Programmes should implement standardised information, surgeon-led education reinforced by nursing/mental-health professionals, and explicit guidance on when to seek unscheduled care. A practical checklist of pre-operative topics can be used to harmonise counselling and align it with patient priorities before surgery. Disclosure No
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Guadagni et al. (2026) studied this question.
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