2129-P: What Is Important to Children 4–12 Years Old with Type 1 Diabetes Attending the Hospital Clinic? Exploring Patient Reported Experience Outcomes, a ProKidsDia Substudy

Introduction and Objective: Our ProKidsDia research team aim to develop and implement an animated, diabetes-specific Patient Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMs) instrument for children with type 1 diabetes(CwD) aged 4-12 years old. Aims of this study were 1) To obtain the perspectives of CwD, parents, teachers and HCP on needs and experiences, when CwD attends an outpatient diabetes clinic in Denmark, 2) To establish a minimal set of PREM domains as the first step in developing an animated PREMs questionnaire. Methods: COSMIN guidelines for developing PROMs were used. Three participatory design workshops were executed in two regions in Denmark (Aug. 2023 - April 2024). Relevant stakeholders partook in the workshops: 16 CwD, 36 Parents, 7 Teachers and 19 HCP and 27 facilitators. Play-based communication were used to engage CwD. All participants (but HCP) were encouraged to describe bio-psycho-social challenges and needs in the PREMs context. All workshops were video- and audio recorded, transcribed, and thematically analyzed. Results: Four PREM domains identified. 1) Diabetes-specific expertise, where trust in the HCP’s expertise played an important role. 2) The hospital environment, in which the consultation rooms were perceived as clinical and not child-friendly, resulting in children being more passive during the consultation. 3) The diabetes team's family-centered approach with emphasis on establishing and maintaining a relationship. 4) Preparation prior to outpatient visits, which was described as important to create a more positive experience for the child Conclusion: This study describes four important PREM domains for CwD, parents, teachers and HCPs when CwD attends an outpatient clinic Disclosure N. Ejskjaer: None. Funding Innovatonspuljen, Digital Health Steno Diabetes Center North Denmark, Heinrich Klopps Legat