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June 8, 2026BMC Medical EthicsOpen Access

Parent views on a two-step consent process used in emergency neonatal research in the delivery room in Eastern Uganda

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Authors

ANAlice NakiyembaBusitema UniversityANAgnes NapyoKabale UniversityMMMartha MuduwaMbale Hospital

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Implication

Qualitative study explores parental acceptability of a two-step consent process in neonatal emergencies, indicating its potential to enhance ethical practices.

Key Points

  • This study aims to explore parent perspectives on a two-step consent process for neonatal research in delivery rooms during high-risk situations.
  • Conducted focus group discussions with parents and caregivers of infants enrolled in a pilot randomized controlled trial.
  • Three FGDs were held with mixed caregiver types, utilizing thematic analysis for data interpretation.
  • Study conducted between March 2023 and February 2024 at a government hospital in Uganda.
  • Mothers viewed the initial verbal consent positively, feeling empowered despite limited understanding.
  • Written consent was preferred after stabilization of the mother and infant.
  • Fathers expressed a desire for information, but mothers felt confident in making decisions independently.

Cite This Study

Nakiyemba et al. (2026) studied this question.

synapsesocial.com/papers/6a265b7cad53cfb9357c50fahttps://doi.org/10.1186/s12910-026-01514-3
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