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June 13, 2026Open Access

Parent views on a two-step consent process used in emergency neonatal research in the delivery room in Eastern Uganda

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Authors

ANAlice NakiyembaANAgnes NapyoMMMartha Muduwa

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Overview

Qualitative study explores parent acceptance of a two-step consent process for neonatal trials in Uganda, suggesting ethical feasibility.

Key Points

  • This research aims to understand parent views on the two-step consent process used in emergency neonatal research.
  • Qualitative study nested within a pilot randomized controlled trial
  • Conducted focus group discussions with caregivers of enrolled infants
  • Thematic analysis used to explore participant perspectives.
  • Mothers viewed the initial verbal consent positively, despite limited understanding.
  • Written consent was preferred once the mother and infant were stabilized.
  • Fathers wanted to be informed, while mothers emphasized their decision-making autonomy.

Cite This Study

Nakiyemba et al. (2026) studied this question.

synapsesocial.com/papers/6a2cf41ffaef96ed7f056802https://doi.org/10.5167/uzh-434439
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Parent views on a two-step consent process used in emergency neonatal research in the delivery room in Eastern Uganda2026
  2. 2Parent perspectives on neonatal research without prior consent: a mixed-methods interview study2026 · 1 citations
  3. 3Acceptability of immediate CPAP for preterm infants in the delivery room to mothers, caregivers and healthcare workers in a low-resource setting: a qualitative study2025 · 2 citations
  4. 4Considering the timing and appropriateness of trial consent during childbirth: a secondary analysis from the qualitative process evaluation of the ROTATE trial2026
  5. 5Emergency verbal consent for intrapartum research: a grounded theory study to explore its acceptability in a clinical trial of a novel device to treat postpartum haemorrhage2024