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This study aims to explore the lived experiences of patients with myeloproliferative neoplasms (MPNs) and suggest improvements for their care.

Lived Experience of Patients with Myeloproliferative Neoplasm: An Interpretative Phenomenological Study

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This study aims to explore the lived experiences of patients with myeloproliferative neoplasms (MPNs) and suggest improvements for their care.
Sixteen patients with essential thrombocythemia, polycythemia vera, or myelofibrosis participated in focus groups.
Data were analyzed using interpretative phenomenological analysis (IPA).
Findings were mapped to the person-centered care (PCC) framework.
Patients reported a significant psychological burden related to their diagnosis, with a need for tailored education and communication.
Three themes emerged: diagnosis impact, emotional distress, and the need for integrated support systems.
Recommendations included structured symptom monitoring and enhanced nurse-led services for continuous care.

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Interpretative phenomenological study investigates the challenges of patients with MPNs, highlighting care improvements.

Berardinelli et al. (2026) studied this question.

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