A coordinated transition of care to a local non-specialty hospital successfully managed a middle-aged woman with complex congenital heart disease and stage D heart failure.
Case Report (n=1)
No
This case highlights the urgent need to establish integrated, community-based care models for frail adults with complex congenital heart disease to ensure access to appropriate care.
A middle-aged woman with complex congenital heart disease (CHD) and stage D heart failure—including a double outlet univentricular heart—faced difficulty accessing a specialised centre due to dyspnoea, frailty and geographic distance. Despite attempting to seek care at local hospitals and clinics, she was turned away due to the absence of specialists in adult CHD (ACHD). Over time, our local tertiary care hospital, though lacking the expertise to care for her ACHD initially, coordinated a gradual transition of care from the ACHD centre to our facility by overlapping services and addressing both her medical and psychological needs. Ultimately, the care transition was successful. This case highlights the urgent need to establish integrated, community-based care models for adults with complex CHD, incorporating local hospitals, primary care providers, home health services and a structured consultation pathway with ACHD specialists. Without such systems, frail patients in advanced stages of CHD with severe complexity may be left without access to appropriate care.
Hiraoka et al. (Mon,) conducted a case report in Complex congenital heart disease and stage D heart failure (n=1). Coordinated transition of care was evaluated. A coordinated transition of care to a local non-specialty hospital successfully managed a middle-aged woman with complex congenital heart disease and stage D heart failure.