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June 28, 2026Health An Interdisciplinary Journal for the Social Study of Health Illness and MedicineOpen Access

Toward an inclusive (crip)epistemology: Exploring the experiences of researchers with lived experience of disability in health research

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Authors

GLGabrielle Leblanc-HuardCCCatherine CôtéALAudrey L’Éspérance

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Overview

Qualitative study examines challenges and opportunities for integrating disability experiences in health research, suggesting significant implications for inclusivity.

Key Points

  • This research aims to understand how researchers with disabilities incorporate their experiences into health research and the barriers they face.
  • Qualitative participatory study with 25 researchers and allies
  • Design-thinking workshop followed by a questionnaire
  • Analysis based on thematic insights from participant discussions
  • Lived experience is often devalued in academia, leading to hesitance in identity disclosure
  • Participants identified unique advantages of lived experience, such as addressing literature gaps
  • Engagement in this work is empowering, contributing to knowledge production and community care

Cite This Study

Leblanc-Huard et al. (2026) studied this question.

synapsesocial.com/papers/6a40bb1461bb0a67205c6bd9https://doi.org/10.1177/13634593261455074
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Also Consider

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  4. 4Epistemic injustice, healthcare disparities and the missing pipeline: reflections on the exclusion of disabled scholars from health research2024 · 15 citations
  5. 5A Case Study Unveiling Challenges And Supports For Deafblind And Neurodivergent Researchers And Participants2024