Key result
Transitioning from paediatric to adult care in congenital heart disease patients is associated with a 26.1% worldwide average loss of follow-up, reaching 31.9% when including untraceable patients.
Why the study?
Patients with congenital heart disease often experience loss of follow-up during the vulnerable transition from paediatric to adult care, leading to increased morbidity and mortality.
What is the percentage of loss of follow-up in adolescents with congenital heart disease transitioning to adult care, and what strategies can lower this risk?
Population
Adolescents and patients born with congenital heart disease
Comparison
Strategies to lower the risk of discontinuity in care vs no strategies
Design
Systematic review
Follow-up
3 years or more
Authors
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Structured transition programs are needed to curb loss to follow-up in CHD; confirms transition from pediatric to adult care as the most vulnerable period.
Systematic Review
Yes
What is the percentage of loss of follow-up in adolescents with congenital heart disease transitioning to adult care, and what strategies can lower this risk?
Loss of follow-up during the transition to adult care in CHD patients is high globally (26.1%), emphasizing the need for structured transition planning and primary care involvement.
Bassareo et al. (2023) conducted a systematic review in Congenital heart disease. Transition from paediatric to adult care was evaluated on Loss of follow-up. Transitioning from paediatric to adult care in congenital heart disease patients is associated with a 26.1% worldwide average loss of follow-up, reaching 31.9% when including untraceable patients.
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