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July 20, 2026Allergy Asthma and Clinical ImmunologyOpen Access

Development and validation of a quality of life scale for pediatric mastocytosis

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Authors

ATAslı Berivan TopçakEÖEce Tüsüz ÖnataŞGŞeyma Genç

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Overview

Randomized trial develops and validates quality of life instruments in pediatric mastocytosis, suggesting a new tool for assessment.

Key Points

  • This study aimed to create and validate quality of life scales specifically for pediatric mastocytosis.
  • 51 children and parents recruited from two specialized centers in Turkey.
  • Scale items developed through expert opinion and literature review.
  • Content validity assessed with the Davis method and construct validity through exploratory factor analysis.
  • Both scales featured 14 items reflecting social and emotional aspects.
  • The Pediatric Mastocytosis Quality of Life-Parent Scale had high internal consistency (α = 0.909).
  • Significant correlations with established instruments confirmed convergent validity.

Cite This Study

Topçak et al. (2026) studied this question.

synapsesocial.com/papers/6a5dbad58bd453d3397abf1fhttps://doi.org/10.1186/s13223-026-01051-z
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1The Mastocytosis Society Survey on Mast Cell Disorders: Patient Experiences and Perceptions2013 · 145 citations
  2. 2Cutaneous Lesions of Mastocytosis: Mast Cell Count, Morphology, and Immunomolecular Phenotype2023 · 9 citations
  3. 3Recommendations for assessing Patient‐Reported Outcomes and Health‐Related quality of life in clinical trials on allergy: a GA2LEN taskforce position paper2009 · 109 citations
  4. 4The Family Dermatology Life Quality Index: measuring the secondary impact of skin disease2006 · 243 citations
  5. 5Development and validation of the mastocytosis quality of life questionnaire: MC-QoL2016 · 78 citations