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July 24, 2026Journal of Palliative Medicine

Assessing Involvement and Training of Academic Palliative Care Programs in the Care of Patients with Sickle Cell Disease: A Nationwide Survey

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Authors

KMKatharine MerrillBGBethany Payne GieselJBJoshua Barclay

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Overview

Nationwide survey assesses palliative care involvement and training for sickle cell disease, highlighting barriers to care.

Key Points

  • The study aims to evaluate palliative care program involvement and training in sickle cell disease management, as well as identify barriers to care access.
  • Nationwide anonymous survey distributed to 180 palliative medicine fellowship program directors in the U.S.
  • Survey assessed demographics, program practices on sickle cell disease, and barriers to care.
  • 51 responses received, equating to a 28.3% response rate.
  • 37% of programs routinely care for sickle cell disease patients; 31.5% inpatient only, 10.5% outpatient.
  • 68% of those caring for sickle cell patients regularly prescribe opioids.
  • 46% cited lack of outpatient resources and 44% staffing constraints as the main barriers to care.

Cite This Study

Merrill et al. (2026) studied this question.

synapsesocial.com/papers/6a6301d3395161722cd16554https://doi.org/10.1177/10966218261472552
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Clinician attitudes toward palliative care to enhance the quality of life for patients with sickle cell disease2025
  2. 2Sickle Cell Disease Providers' Perspectives on Palliative Care2024 · 1 citations
  3. 3The role of palliative care in sickle cell disease: A single database literature review of contemporary outcomes data2025
  4. 4Identifying educational and resource needs of general internal medicine physicians in sickle cell disease management.2025
  5. 5Trainees’ perspectives on sickle cell education: a qualitative needs assessment2024 · 1 citations