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July 26, 2026Genel Tıp DergisiOpen Access

Evaluation of Quality of Life in Children with Hemophilia

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Authors

MÇMerve Kılıç ÇilAdana Numune Eğitim ve Araştırma HastanesiMÇMetin ÇilSağlık Bilimleri ÜniversitesiMAMüzeyyen Gönül Aydoğan

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Overview

Cross-sectional study evaluates quality of life in children with hemophilia, indicating the importance of prophylaxis and joint health.

Key Points

  • This study evaluates the quality of life in pediatric hemophilia patients and the impact of clinical variables.
  • Cross-sectional study including 40 hemophilia patients aged 8-12 years and their parents.
  • Data collected using the Pediatric Quality of Life Inventory (PedsQL™) Hematology/Oncology Module.
  • Assessment of clinical variables such as disease severity, prophylaxis status, and presence of target joints.
  • 57.5% of patients had severe hemophilia, and 60% were receiving regular prophylaxis.
  • Prophylaxis group reported significantly less pain (p=0.038) compared to non-prophylaxis group.
  • Patients without target joints scored better for pain compared to those with target joints (p=0.025).

Cite This Study

Çil et al. (2026) studied this question.

synapsesocial.com/papers/6a65a7b4d3aea3239cd7863chttps://doi.org/10.54005/geneltip.1804566
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Quality-of-Life Assessment and Pharmacokinetic Study in Hemophilia A Patients Undergoing Prophylactic Treatment2025 · 5 citations
  2. 2Correlation of clinico-hematological and biochemical features with quality of life in hemophilia patients2026
  3. 3Quality of Life in People With Haemophilia: Results in the Framework of a Nationwide Registry in Colombia2026
  4. 4A Retrospective Observational Study of Quality of Life in a Northern Greece Population of People with Haemophilia2024 · 5 citations
  5. 5[Long-term health-related quality of life and related factors in children with severe hemophilia A who received regular low-dose prophylaxiss].2024