Data standards for heart failure: the European Unified Registries for Heart Care Evaluation and Randomized Trials (EuroHeart)
Why the study?
Standardized data definitions are essential for assessing quality of care and patient outcomes, prompting EuroHeart to create contemporary pan-European data standards for heart failure.
Design
Systematic review and modified Delphi consensus process
Authors
Discussion
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Member takes
Implication
May aid harmonized HF data collection in Europe; leaves open effects on outcomes and research.
Key Points
- The aim is to develop standardized data definitions for assessing heart failure care and patient outcomes across Europe.
- Created a Working Group of experts in heart failure registries
- Conducted a systematic review using Embase and Medline from 2016-2021
- Used a modified Delphi method to reach consensus on 84 Level 1 and 79 Level 2 variables for heart failure care.
- 84 Level 1 and 79 Level 2 variables were selected related to heart failure care
- Developed a dataset for patient registration on EuroHeart IT platform
- Established harmonized standards to facilitate quality improvement and research across Europe.
Cite This Study
Aktaa et al. (2022) studied this question.