For Better or for Worse: The Experience of Caring for an Elderly Dementing Spouse

The Hughes Hall Project for Later Life screened all people aged 75 years and over on the lists of seven general practices in Cambridge in order to identify those who were suffering from dementia. Of those living at home, it was found that 40% were being cared for primarily by husbands or wives, most of whom were themselves over the age of 75. In this paper we describe a group of 34 married couples in which one partner was diagnosed as demented. We suggest that for the nondernenting partner, the experience of caring differs in important respects from that of the more typical carer – usually younger and female – described in much of the research literature.