Key result
The Question Prompt List was successfully adapted into Swedish and Dutch versions, with patients and families finding the questions relevant and expressing interest in discussing them without worry.
Why the study?
The study was conducted to optimize a Question Prompt List designed to improve communication about the heart failure trajectory among patients, family members, and health care professionals.
Cross-Sectional (n=185)
Yes
A tailored Question Prompt List is acceptable and in demand among heart failure patients, families, and healthcare professionals to facilitate communication about the illness trajectory and end-of-life care.
Supports adaptation of question prompt lists for Swedish and Dutch palliative care; leaves open effects on discussion quality and decision outcomes.
BACKGROUND: The aim of this study was to optimize a Question Prompt List which is designed to improve communication about the heart failure trajectory among patients, family members, and health care professionals. METHODS: Data were collected in a two-round Delphi survey and a cross-sectional survey, including patients with heart failure, their family members, and health care professionals working in heart failure care in Sweden and the Netherlands. Acceptability for and demand of the Question Prompt List were assessed. RESULTS: A total of 96 patients, 63 family members and 26 health care professionals participated in the study. Regarding acceptability, most of the original questions were found to be relevant by the participants for inclusion in the Question Prompt List but some cultural differences exist, which resulted in two versions of the list: a Swedish version including 33 questions and a Dutch version including 38 questions. Concerning demand, participants reported that they were interested in discussing the questions in the revised Question Prompt List with a physician or a nurse. Few patients and family members reported that they were worried by the questions in the Question Prompt List and hence did not want to discuss the questions. CONCLUSIONS: This Question Prompt List has successfully been adapted into a Swedish version and a Dutch version and includes questions about the HF trajectory which patients, their families, and health care professionals perceived to be relevant for discussion in clinical practice. Overall, patients and family members were not worried about the content in the Question Prompt List and if used in accordance with patients' and family members' preferences, the Question Prompt List can help to improve communication about the heart failure trajectory.
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Hjelmfors et al. (2020) conducted a cross-sectional in Heart failure (n=185). Question Prompt List (QPL) was evaluated on Acceptability and demand of the Question Prompt List. The Question Prompt List was successfully adapted into Swedish and Dutch versions, with patients and families finding the questions relevant and expressing interest in discussing them without worry.
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