What question did this study set out to answer?

To examine how adults with long COVID from marginalized groups or with preexisting mental health conditions manage symptoms, navigate healthcare systems, and identify priorities for care reform.

August 16, 2026Disability and Rehabilitation

Navigating long COVID: integrated self-management, structural barriers, and patient-identified recommendations among marginalized populations and individuals with preexisting mental health conditions

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Authors

YPYunxi Piao TWThinuri WelithotageUniversity of Toronto MHMinahil Haq

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Implication

Qualitative study reveals significant structural barriers and reliance on self-management in adults with long COVID, highlighting the need for coordinated, culturally informed care pathways.

Key Points

To examine how adults with long COVID from marginalized groups or with preexisting mental health conditions manage symptoms, navigate healthcare systems, and identify priorities for care reform.
Conducted semi-structured virtual interviews with 34 adults living in Canada with long COVID from marginalized/visible minority groups or with preexisting mental health conditions.
Analyzed verbatim transcripts using inductive thematic analysis in accordance with the COREQ reporting guidelines.
Identified four core themes: personal strategies for well-being (pacing and routine adaptation), advocacy and access barriers (fragmented care and delays), clinical awareness limitations (diagnostic uncertainty), and social support dynamics (identity-based bias and community reliance).
Participants emphasized key recommendations including symptom-based diagnosis, centralized and coordinated care pathways, pacing-centered rehabilitation, navigation support, and culturally informed services.

Cite This Study

Piao et al. (2026) studied this question.

synapsesocial.com/papers/6a817a21f2fb91fc834adc3a https://doi.org/10.1080/09638288.2026.2715082

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Implication

Qualitative study reveals significant structural barriers and reliance on self-management in adults with long COVID, highlighting the need for coordinated, culturally informed care pathways.

Navigating long COVID: integrated self-management, structural barriers, and patient-identified recommendations among marginalized populations and individuals with preexisting mental health conditions

Discussion

Member takes

Implication

Key Points

Cite This Study

Navigating long COVID: integrated self-management, structural barriers, and patient-identified recommendations among marginalized populations and individuals with preexisting mental health conditions

Discussion

Member takes

Implication

Key Points

Cite This Study

Also Consider

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